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Taasisi ya Albinism ya Zambia
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02:20
Stop killing People with Albinism
This video made in 2021 is a reenactment of what ritual killers who attack people living with albinism feel and face after they carry out these inhumane attacks against their fellow human beings. It talks about how despite them showing no mercy while carrying out these attacks against men, women and just small children, they live with the images, voices and memories of these attacks they did against innocent lives. And these memories which they have been unfortunate to live with torture them despite them carrying out the deed and affecting families who have been left without the beloved family members. It talks about how despite carrying out these attacks they do not have the money they promised but are on the wanted list of the police system and how people live in fear, agony and anger of the people carrying out these inhumane acts of crime against innocent lives who did not deserve to die all for money which can never be as valuable as the life of a human being. Stop attacks against people with Albinism. #disabilityawareness #africa #ZAMBIA #albinism #albinismawareness #disabilityrights #advocacyawareness #zambia
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15:24
still standing strong
In 2021 Mr John Chiti the chairperson of the Albinism foundation of Zambia organization shared the story of a young girl Miriam Kumwenda in chama district who was attacked in 2018, her right hand was chopped off for ritual purpose and as he recounts the story (insert year) the case has not been gone far and the court had not yet gone to court, 5 people had been arrested following this case. Mirriam who was the victim had been having challenges in using mobility as she was not able to cook, clean or even work on the farm which are things she was able to do prior before the unfortunate incident happened of her arm being cut off in 2018. Her school was also been affected as she right handed and was not able to write Mr John said in order to continue with her life, she would need rehabilitation to be able to train her left arm and hand to do the things her dominant arm and hand was able to do and see what kind of skill she can have. Mirriam is still traumatized by the attack she experienced especially when she has to move around at night. Mr John stressed that it was important that the Community of Albinism gets to enjoy their human rights just like any other citizen of the country. When he was interviewing her Mr John Chiti asked Mirriam what she would like the government to do to the individuals who attacked her . She responded saying she would be put at ease knowing they were locked up or better yet chopped like they did to her. She recounts how this attack had left her emotionally scarred and is very traumatized upto date. Mirriam was 3 months pregnant with her daughter Malumbo when she was attacked by the ritual killers but she and her unborn child both survived the unfortunate incident. #albinismawareness #advocacyawareness #albinism #disabilityrights
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02:47
Rising above Albinism stigma. Susan Phiri's story.
Meet Susan Phiri is a Branch coordinator under Albinism Foundation of Zambia and has been part of the organisation since 2014. She became a secretary in 2019 and her role changed from secretary to facilitator in 2020 when she was invited for the capacity building workshop with steps, until she was promoted to lusaka branch coordinator in January 2024 , a position she still currently holds. She comes from a family where her step father who she was being brought up by and he believed that because she has Albinism she was cursed and he never wanted to be near her or even eat with her. She felt outcast from having friends of her own and felt she wasn't human enough to live a normal life. Susan felt excluded because she looked different from those around her. It wasn't until she met Mr John Chiti the chairperson of AFZ that she became a member of the organisation of AFZ and she came to learn more about what Albinism is and what it isn't. What causes it and through this she was encouraged to build her self image and self esteem. Mr John Chiti invited Susan to a workshop for steps a partner with AFZ that facilities workshops and trains individuals on how to facilitate using film and all this was to raise awareness about albinism. Susan's self esteem grew so much to the point that she's not a senior facilitator and can even educate other people on albinism and also encourage the members of the Albinism community to find themselves. Susan is a model, as well as a gospel singer and an actress. She is very happy with her role at AFZ and she's able to educate others on Albinism and she has been able to even take care of herself financially, to be able to live on her own and even take her son to school. Check out her story from the YouTube link below and find out more information about Susan and her personal story and how she has overcome some really tough life challenges and managed to not only make a bright future for herself but also inspire so many others . Thank you to Susan for sharing her story with us and for becoming part of shaping our story and mission. https://youtu.be/Tkl4JUb0Ubs?si=lq1N3SuFmlEzJ9tp #Albinismawareness #Advocacyawareness #Disabilityrights #Disabilityawareness #albinism #AlbinismFoundationZambia
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03:18
Susan Phiri's change story
Meet Susan Phiri is a facilitator under Albinism Foundation of Zambia and has been part of the organisation since 2014. She became a secretary in 2019 and her role changed from secretary to facilitator in 2020 when she was invited for the capacity building workshop with steps, until she was promoted to lusaka branch coordinator in January 2024 , a position she still currently holds. She comes from a family where her step father who she was being brought up by and he believed that because she has Albinism she was cursed and he never wanted to be near her or even eat with her. She felt outcast from having friends of her own and felt she wasn't human enough to live a normal life. Susan felt excluded because she looked different from those around her. It wasn't until she met Mr John Chiti the chairperson of AFZ that she became a member of the organisation of AFZ and she came to learn more about what Albinism is and what it isn't. What causes it and through this she was encouraged to build her self image and self esteem. Mr John Chiti invited Susan to a workshop for steps a partner with AFZ that facilities workshops and trains individuals on how to facilitate using film and all this was to raise awareness about albinism. Susan's self esteem grew so much to the point that she's not a senior facilitator and can even educate other people on albinism and also encourage the members of the Albinism community to find themselves. Susan is a model, as well as a gospel singer and an actress. She is very happy with her role at AFZ and she's able to educate others on Albinism and she has been able to even take care of herself financially, to be able to live on her own and even take her son to school. Check out her story from the YouTube link below and find out more information about Susan and her personal story and how she has overcome some really tough life challenges and managed to not only make a bright future for herself but also inspire so many others . Thank you to Susan for sharing her story with us and for becoming part of shaping our story and mission. https://youtu.be/Tkl4JUb0Ubs?si=lq1N3SuFmlEzJ9tp #albinismawareness #albinism #advocacyawareness #disabilityawareness #disabilityrights
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06:45
If we all lived with Albinism. how different would the world be? (Bemba narration)
This video was shot in 2021 and it reflects on how different your life would be if you had eyes which didn't see well, If being in the sun was impossible and you visibly different from everyone around you. As this video progresses you will understand the experience of living with albinism. And if the entire population of the earth lived with albinism it would be a very shared but difficult lifestyle. According to Albinism foundation of Zambia albinism is a condition which affects all races of human beings and in the USA one in 18,000 to 20,000 people have albinism. In Zambia today we have 30,000 people living with Albinism and it's mostly common in those living in the continent of Africa. Most of the people in Africa use farming as a means to generate income to survive but because the skin of those living with albinism are prone to skin cancer under the harsh rays of the African sun, it makes it hard for them to stay outside for prolonged periods of time. Financial challenges aren't the only problem people with albinism are facing but also the ritual killings which they are subjected to by just existing, especially in Zambia and Tanzania which has affected more than 100 people since the year of 2000. And this happens because there is a myth that their body parts are very valuable or have powers. The main reason people with albinism suffer from this condition is because of the lack of melanin which is present in most people from their nails, eyes and skin this is why people with Albinism have pale skin and pale eyes. So what would we all look like if we had Albinism? Well it affects different persons in different ways. The eyes could be cloudy or light or neither of these. Living with albinism means always protecting ones skin with special sunglasses, long sleeved shirts, dresses and also sunhats to protect from the harmful sun rays. And this is because lack of melanin leads to skin cancer and this has been the leading cause of most deaths in people with albinism and why their life expectancy is not above 40 years old. In today's world of knowing preventive measures like applying sunscreen, wearing protective clothing and gear at least helps extend one's lifespan. Another preventative measure is doing outside work in the morning before the sun is too harsh or living in countries with cooler climate.. Skin cancer isn't the only disease affecting the community with albinism but also sight problems which doesn't allow them to have good vision, which is alleviated by using glasses or machines to read or see better and also learning braille (alphabet for the blind). Self driving cars are also a solution for mobility for those who are more financially stable. If we all had Albinism it would be easier to create an inclusive world in which we all have access to an easier life that takes into consideration the condition of living with albinism. #skincancerawareness #skincancerprevention #albinism #albinismawareness #disabilityrights #advocacyawareness #disabilityawareness #zambia #africa
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03:29
Mirriam kumwenda Survivor of attacks targeted on people with Albinism
Mirriam Kumwenda is a courageous survivor of violent attacks targeting individuals with albinism. Her resilience in the face of adversity has made her a symbol of strength and advocacy for the rights and protection of people with albinism. Through her story, she sheds light on the urgent need to end discrimination and violence against marginalized communities.
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